I have had a good week. Bryan and Joe came in briefly on Thursday night. It might have been Friday morning, I'm really not sure. I got up at 5:00 am, and visited with them until 6:00 am, when they left on another road trip. Plans were to start out @ Graceland in Memphis, TN, then end up @ Wrigley Field for the last game of the season on Sun. night. They had other stops planned on the way. I'm not really sure where exactly they are now, I just know they will be back here Tuesday morning.
Saturday night Don and I had dinner at Luigi's. It was our first circle meeting for the year. It was good to see everyone again. It was a nice night.
Lana and I drove over to Paris for treatment this morning. My appointment was at 10:00. I finally got to see the Dr. about 11:15, and she told me I would not get chemo this week. It seems my white count is vera, vera, off! News to me, I've never felt better! The good news is that my red counts were good, and I've finally managed to gain a little weight. The Chemo Nazi says "NO CHEMO FOR YOU!"
Dr.'s orders for this week are for me to have a good time. I'm not in isolation or anything, I can go out to eat, or go shopping, whatever. I don't need to get on a plane, bus or, where everyone is crowded in, or be around anyone who is in the least bit sick, but I can get out, so I guess I'll just sit back and enjoy a second week in a row with no pump following me around!
My wonderful sister in law, Lenice is planning a trip up this weekend, and I hear that Johnny Rodriquez is performing at the fair this weekend. Talk about a blast from the past. Don and I used to dance to him back in our college days. Might have to go have a listen.
Please keep us in your prayers, we are going to get through this with God's help!!!
Annaleisa
The things that don't kill us make us stronger. Living a full life as a Cancer Survivor.
Monday, September 24, 2007
Skipping Treatment
Monday, September 17, 2007
Week 3 September 14-17
Friday the 14th started off with a special surprise. A call from "Cousin" Lynn. It was wonderful to hear her happy voice again. You don't realize how much a voice, or tone can effect people until you hear them after a long absence. That might be why I prefer to call people rather than write or e-mail. I like to hear voices. She's planning a visit for October. She'll be driving in with Page. I'm so glad I'll be able to see them again. We'll have lots of catching up to do.
Friday afternoon I drove the 5 hour drive to Anahuac, TX. My hometown. Southeast Texas. The Alligator capital of Texas, and not published, but I've alway thought it might also be the mosquito capital of Texas. I went down for a mini class reunion, and the "Gatorfest".
Don decided it would be best if he stayed here, and in spite of all of my pleading he wouldn't be budged.
I'm going to try to add some pictures to this post later, but I need to find out from the kids how to add them. Computers really aren't my thing.
Bryan and Roddy Simpson met me down there, and we spent the day with Loy, Veggie, her precious Adrian, Cheryle and her family, Carol, Carolyn, Kathy, Dawn,Lee, Dee, Rusty,and Jim. I got to see David and Debbie, Donna and Donnie, Wayne and Elizabeth, Becky, Niki (one of my baby cousins, who has grown into a beautiful young lady) Aunt Joby, and Aunt Biddy. I'm sure I've left someone out. I don't mean too but it really was an overwhelming day.
The girls took a boat ride up the Trinity river. I had never seen the river from the bay up. Didn't realize there were so many cabins along the west bank. We spotted one alligator, but were told that most of them hide during the gatorfest. They might be smarter than we give them credit for!
The most fun part of the day was an airboat ride I took with Bryan and Roddy. We spun around, hit and flew over a mud bank, hit more water, spun some more, and it was over before I wanted it to be. It was a BLAST! I want to learn to drive one of those things. I kept yelling "make it go faster!"
We ate corny dogs, barbecue, drank lemonaide, had snow cones, and more or less grazed all day.
That night there was a concert "under the hill". I don't remember ever seeing that many people in Anahuac before. John A. Miller showed up, Mike Fountain was there, and I didn't recognize Curtis Smith. I'm sure I've left someone out. We all stayed in the back of a tent in the beer garden, so we didn't have to fight the crowd. I think everyone had a good time, I know I did. It was just so much fun seeing all of my old friends, and catching up after so many years.
Sunday morning I met my wonderful Carol Gary in Beaumont for lunch. She's celebrating a new career! Executive Director of the Beaumont Fire Museum. After lunch I was treated to a private tour of the museum, then a driving tour of downtown Beaumont. It sure looks different than I remembered. Of course I haven't been down there since probably the early '70's! We drove out to her house and I had a chance to see Wade, and meet Michael. We all had a fun visit, I haven't gotten to spend as much time with her as I would like, she has a sunshine personality, and can make any situation funny. She is really a special friend.
I got back to Mt. Pleasant around 10:00 Sunday night. Don met me with sad news. Our youngest dog, Ray Price, had been run over. We had planned on sending him up to Indiana, to champion him out. I think Don is more upset than he is trying to show. It is sad sitting on the deck and not hearing Ray constantly bark.
My Mom was a gracious hostess this weekend, she had dinner, breakfast, and lunch ready whenever anyone was ready. She put up with all the comings and goings patiently. Thanks Mom, and thanks for sharing your kitty with me for 2 nights.
Sept 10-13 Week 2
The last time I had a treatment, my red counts were low. I couldn't get out of bed for most of that week. Don decided we'd try an experiment and I'd eat red meat before the next treatment. On Sunday night he grilled sirloin strips, medium rare. They were delicious!
I drove myself to Titus Regional Hospital here in Mt. Pleasant on Monday morning for my appointment with Dr. Wilcox. Believe it or not after the lab reports came back in we found out that my red count was normal! Don is really onto something, but I always knew he was highly intelligent!
I slept through most of the infusion, then drove myself home. The only side effect I had this time was being uncomfortably cold. I layered on the clothes, and gloves until I looked like a bag lady wearing everything she owns. I spent most of Tuesday in the bed, then it was steak time again. This time we tried rib-eyes, yum!
I went back to TRMC on Wednesday to have the pump removed. The chemo never really knocked me down this time. I was able to run errands on Thursday. It felt good to not loose a day this week. I'm pretty sure Don must be onto something with the red meat. We'll be trying it again next treatment week.
Sept.1-9 Week 1
I'm going to have to break September into three posts. So much has been happening, I'm having a hard time keeping it all straight!
Sarah, Lee, and Bryan came in for Labor Day weekend. We didn't scare Lee off!!! It was a hoot. On Sunday, Danielle and her Brian came in for the day to swim and visit. They ended up staying the night. The boys all went hunting and the girls hung out on the deck. It was so much fun seeing Sarah and Danielle get all caught up.
The house cleared out Monday, and Tuesday Sarah and I went to Longview to do some shopping and have lunch. We had a really fun day, but I got a little sick on the way home that afternoon. I'm going to learn someday that just because a rueben sandwich sounds good, it's not necessarily such a good idea.
Tuesday was Don and my 31st anniversary. Imagine that! Sarah cooked shrimp scampi for us that night, while we had a little "date" on the deck.
On Wednesday, we had to take our little girl back to Dallas to catch her flight. I didn't cry this time, we'll be seeing her at Thanksgiving, and that will be here before we know it.
Stephanie and Alice came over Thursday night. It's always good to see friends, and we had a nice vistit. Don and I went to dinner on Saturday night with Barry and Lana. The Carson House is as good as I remembered it. I think the last time we were there was New Years Eve 2001.
So much for week 1, I'll continue with week 2 in the next post.
Friday, August 31, 2007
Coming Out of the Tunnel
Don and I had a wonderful week last week. We went out to dinner with Barry and Lana on Friday night, Sunday night Jeanni and Colt came over and brought aspargus quiche, asparagus soup, and chicken noodle soup. I HAVE to have those recipes! Colt enjoyed the pool, and it was so much fun watching him have fun. Margaret came by Monday morning and brought a delicious pound cake. Mary Gail brought by some of Bob's famous chicken soup on Monday night. I had lunch out with Alice on Thursday, and Stephanie and Carla came by for a visit that afternoon. On Friday, I went to the shop, and helped with some funeral work. I actually got to work on two easels. It was good to be back. Nancy worked me in for a hair appointment, isn't it funny how good the beauty shop makes you feel? Maybe it's a girl thing. She is so funny. She has refilled my freezer with peas!!!! Yes, they are still very yummy, and I'm still going through them at a pretty good clip. Connie brought a big pot of vegetable soup in, and then made us some broccoli cheese soup. I walked three miles only once this past week. It was just too hot! I did swim quite a bit. Sunday afternoon Hazel brought her two grandbabies over to swim. They really had fun and it was entertaining just watching them enjoy the water.
On Monday Stephanie drove me to Paris for my third treatment. I've lost another pound. I don't get it. I have been eating more than I ever have and I just can't seem to keep the weight on. Believe me, my friends are keeping us well fed! I was glad to have the opportunity to visit with Stephanie. We had lost touch when I was going in to work everyday. She is lots of fun. The treatment went well. Dr Wilcox added some benadryl to the infusion so that I wouldn't break out in another rash. That seemed to help some. I only had two little places come through on my left arm this Thursday.
My red counts were low, but because I seemed to be in otherwise pretty good shape, and my white counts were normal, Dr. Wilcox went ahead with the treatment. I know now why you don't want to get chemo when your red counts are low. I couldn't get out of bed on Tuesday. Don cooked a steak and I was a little better on Wednesday, but I didn't truly rebound until this morning.
A funny new side effect hit me last Monday night. I HAD to have a milk shake. I talked Don into going into town for one, against his better judgement. I knew I needed to drink tiny sips, and do it slowly. It was good! When I went to tell Don good night, I couldn't talk. My tongue was frozen. I sounded like Sylvester the cat. It was so funny, that I had to try to say every word I could think of that started with an "s".
Sarah, Lee and Bryan will all be here this weekend. I haven't seen Lee since I was in the hospital. I hope we don't scare him off. I think Don and Bryan are planning to take him hunting. Welcome to East Texas Lee!
Sarah will get to stay until Wednesday, then it's back to Florida for her. Wish I could go with her. We are going to try to do some shopping, and other than that just hang out at the pool.
If I don't post much this next week, please forgive me again. I'm going to try to enjoy life as much as I can, and that might not include sitting in front of this computer. The sun is supposed to be out every day this next week!! I'm feeling strong, and continue to thank the Lord for all the blessings he has given me. Keep us in your prayers.
Wednesday, August 15, 2007
Round 2
So far I'm making it through round 2. The infusion on Tuesday took about 4 hours. The doctor was running behind, and the chemo room was almost full. I got my full dose of Folfox, and it was followed with a 1 1/2 hour infusion of Avastin. I'm still wearing the pump with an IV of Fluorauracil. It will come off tomorrow at 12:30.
I felt pretty good yesterday, but woke up nauseated this morning. I just couldn't get going today. Late this afternoon I broke out in an itchy rash on both of my arms. The neuropathy is back. I'm drinking lukewarm liquids, eating lukewarm fruit, and wearing my leather gloves in the kitchen. Thank goodness it will probably be gone in a few days.
So now everyone knows that I'm really a closet whiner. Sorry. Tomorrow will be a better day.
Thank you all for your continued prayers, cards, and e-mails.
Thursday, August 9, 2007
What a wonderful day it has been. I rejoice and am glad in it.
Plans were to stay at home all day, and get caught up on my correspondence. I almost met that goal. I still have three letters to write, and I'll be up to date:). Now, if I can just get to the post office in the morning, I'll be doing all the good.
The weather is absolutely beautiful, the sky is blue. What more could anyone ask for? I didn't walk tonight, our friends Barry and Lana dropped by, and I was glad for the diversion. We are going to get together this weekend, so that's something to look forward to.
Connie will be here in the morning to help me with bookwork, and thank goodness Mom is still here to help me in the kitchen. I should be all set for next week, with a freezer full of Magic Mineral Broth, (thank you Lisa) and purple hull peas(thank you Debi)!
I am so grateful for a wonderful day like today.
Tuesday, August 7, 2007
Catch up
I am so sorry I do not post more often than I do. I seem to get wrapped up in all I want to get done, and before I know it the day is gone! I am going to try to do better, but let me warn you--I don't really lead a very interesting life, so please bear with me, and I hope you don't get too bored!!!! ---
First of all I need to thank everyone who has posted, called, sent cards, or e-mailed us. You will never know what that small gesture on your part has meant to me and Don. It is such a joy to pick up the mail, check the blog or e-mail, and receive a note. The small things you all continue to do have sustained us. We are amazed and humbled at the outpouring of love that is being shown to us. ---
Now, let me make this perfectly clear. My first round of chemo was wretched. That about sums it up. The tingling in my fingers lingered until Monday of this week. Today is the first day I have been able to drink anything with ice in it comfortably. Enough of my whining. ---
I started feeling a little better by Friday afternoon last week. Saturday was a little better than Friday, and Bryan came home! Don and Bryan had guys night out and went to see the Bourne Ultimatum. They both gave the movie two thumbs up. I'm so glad Don got to go do something fun for a change. It seems that his life is all about taking care of everyone else. He is absolutely the best husband, and son anyone could ever hope for. I am so fortunate. ---
Sunday morning I woke up and felt like a human being is supposed to feel. It was wonderful! I put my suit on and got in the pool for the first time in two years. Marvelous!!!!!! I had floated around for about an hour and a half, when I got a sympathy call from the funeral home. Only another florist can appreciate what that really means. I had to go! I had no idea what we had in stock, I'm officially out of the loop. I took care of the family, and was greening up their order, when Felecia came in and rescued me. The neuropathy in my hands was still giving me some trouble, so everytime I picked up a piece of greenery I felt like electric shocks were running through my fingers. ---
When I got home Mom had lunch ready. I ate like a farm hand. Pot roast, with all the trimmings, and fresh peas, absolutely yummm!!!!!! I don't think I've told many people about this, but, I discovered last week that whenever peas are cooking my mouth starts watering. I can't eat them fast enough, or often enough. Thank goodness they are in season now.
Sunday was good. ---
Monday, Don, Mom, and I went to Dallas to see Dr. Crim, the colon surgeon. He did his final post op exam, and cleared me for six months, or the end of chemo, which ever comes first. I always feel so much better after seeing him. His attitude is so positive. ---
After the appointment, we stopped by Central Market and did a little shopping. My friend Lisa McDaniel gave me a wonderful cookbook for cancer survivors called "One Bite at Time". I couldn't wait to try the recipes, but some of the ingredients are hard to find in Mt. Pleasant. We got everything we need to make "Magic Mineral Broth", and that's on my to do list for Wednesday. ---
Today, Tuesday August 7, has been a blessing I won't take lightly. I started out at 7:00 this morning by making my to do list. Unfortunately, I didn't get it all done, but it will carry over. Mom ran errands with me this morning, and we got everything done by 11:15. I put my suit back on, and rested by the pool for a while this afternoon, until my friend Debbie Newman came over bearing a whole bushel of peas!!!! We got to catch up, and celebrate her good news. Her husband, Hollis, who was diagnosed with Acute Myelogenous Leukemia (AML) is now officially in remission!!!!! YEAH!!!!!!!! He is such an inspiration. He picked all those peas this morning, what a guy! ---
Mom, Hazel, and I shelled peas until late this afternoon. My mouth started watering while I was doing that too. I think I must be pea obsessed. When Don got home we walked a mile, and I felt like I could have gone more, but our friend Ronnie dropped by and we stopped, grateful for the company. I'm slowly working back to 2 miles. We finished the evening off with another quick swim which was really refreshing!---
I am so grateful for today. God has truly blessed me. I have not felt this good since February! I can't wait till tomorrow. I'm gonna finish that list and start a new one!
Friday, August 3, 2007
Feeling a bit better
First round of chemo was Monday. I received a 3 hour IV, of what the Dr. calls "Folfax". It is a recipe of 3 different types of chemo drugs. When the office infusion finished, they hooked me up to a portable pump, and I came home with a 42 hour dose attached to me. It wasn't quite the piece of cake I thought it might be.
By that afternoon I was already feeling some of the side effects. I couldn't eat or drink anything the least bit cold, and I could not reach into the fridge without gloves on. Didn't I look a sight, 90 degrees outside, and I'm wearing black leather gloves! The nausea held off until Wed. morning when we were able to go to the local hospital and have the pump removed. I guess it was a delayed reaction, but by Thursday, I couldn't get out of bed, and could barely open my eyes.
Now it's Friday :) I feel much better! Bryan is coming in for the weekend and Mom is here watching over us. I'm looking forward to visiting with friends, and just enjoying the sunshine!
I will be going in for the next treatment on Tuesday, August 14., so I will have a week of feeling good ahead.
Wednesday, July 25, 2007
Before Ports, We Have Airports...
This is an interactive blog. Some of the words in the blog are links... click the link and an associated picture will pop up in a new window.
I have been so pleased with the resurgence of Mom's energy as she recovers from the surgery. Over the past week, she has seemed as though she were going stir crazy from lack of activity. Since her port was not scheduled to be installed until Tuesday (the 24th), I suggested that she make a quick trip to Florida for a little R&R. To my excitement she accepted the invite!
On Friday, I had to work a little bit, so Mom got acquainted with my building. She especially loved the meditation garden on the 6th floor. There is a gazebo overlooking the New River, and Mom adored the purple flowers that covered it. She also liked watching the boats out front... and the view. She said that she can see how the view causes me to reflect and think about things. It's very theraputic.
After I finished my work, we went for a little tour of the area, and ended up back at my favorite restaurant on Ft. Lauderdale Beach. It is called Spazio, and we were able to snag a table on the sidewalk, and enjoy the weather, the beach and the people watching. There were sailors in town this weekend, so we got a kick out of talking to them. How DO YOU keep those pants to incredibly white?!
On Saturday, we drove up to Palm Beach and checked out Donald Trump's house. Even though we weren't able to drive up to the gates, we could tell that it was quite garish, but that was to be expected. Apparently it's not a house at all, but a private club.
After Palm Beach, we cruised back down South to Hollywood and visited the Hard Rock Casino. That was a real treat. Mom had asked several times how close I was to the casino, especially after all of the circus with Anna Nicole had started. The weather wasn't great, so it was a perfect time to check out an indoor attraction. Something really funny happened as we walked in, but I don't think I could do it justice on a blog. It's the kind of story that needs to be told in person. Ask Mom about it when you see her next.
On Sunday, we had the most active day yet. We spent the afternoon in South Beach. That's right, Mom went to South Beach. :-) The weather was still pretty dreary, so we were really lucky to get a great parking spot. We walked up and down the main drag and ranked our favorite buildings. The Tides Hotel was magnificent. Then we got to see Versace's pad. Wow.
When we got back to Ft. Lauderdale, we had just enough time to take a boat tour before dinner. It was the perfect way to end the day. The tour took us from the dock near my apartment, through downtown, then a residential area, then the beach area, then Port Everglades. We got to see more boats, big houses, 2 battleships, an aircraft carrier and a nuclear submarine. I'd say it was a full tour. lol.
On the last night, I cooked dinner for Mom, Matt (my roommate) and Bohdan (my neighbor and best friend's husband). Of course, Mom being a mom, she needed a picture of the three of us at the dinner table... to show my dad that we are a respectable lot. lol. We sure fooled her... or something.
Without a doubt, this trip was a great decision for all of us. I was amazed at Mom's energy... we had a blast... it was a great bonding experience... and now Mom knows that the quicker she gets better the quicker she can come back. :-) I'm really looking forward to the next visit.
Since her return to Texas, she has had her port installed in her chest. She was lucky enough to get just a single port, so that it wouldn't be so intrusive. I see that as a good sign. The treatments will begin next week, and we're all really nervous about how she will respond to them. I sure hope that they don't make her too terribly ill. I know that she loves hearing from everyone, so maybe if we band together and send her lots of lovely messages she will not get so sick off of the chemo. It's worth a shot! :-) Thanks again for all of your support... and a BIG SPECIAL thank you to Lenice. I don't know if I could have gotten Mom here without your help.